The Fibrous Dysplasia/McCune-Albright Syndrome Patient Registry: Your story powers research!
FD/MAS Patient Registry
The FD/MAS Patient Registry is an IRB-approved research study that invites the patients and families to help answer some of the biggest questions about FD/MAS by completing questionnaires about their lives with FD or MAS.
Have you enrolled in the FD/MAS Patient Registry yet? Are you up-to-date on your surveys? Take a trip to www.fdmasregistry.org today to learn more
For Patients
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the patient community.
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further your research?