The FD/MAS Patient Registry

Sponsor

FD/MAS Alliance
7315 Wisconsin Ave, Suite 400,
W PMB 103 Bethesda, MD 20814
www.fdmasalliance.org

Registry Contact Person

Tovah Burstein
Registry@fibrousdysplasia.org

Institutional Review Board (IRB)

North Star Review Board
https://learningirb.org/
info@northstarreviewboard.org

Social Media & Newsletter

FD/MAS Patient Registry | Facebook
FD/MAS Patient Registry | Instagram
FD/MAS Patient Registry | LinkedIn
FD/MAS Patient Registry | YouTube

protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at https://learningirb.org/.

Visit the National Organization for Rare Disorders home page at rarediseases.org.